Government Response to the LeDeR.

This week the government published a response to the Learning Disabilities Mortality LeDeRReview (LeDeR).  It has been three months since the LeDeR report was published, highlighting the earlier mortality rate amongst individuals with LD compared to those without (to read an overview of the LeDeR see the previous GLLDCoP blog).  The report emphasised the need for better awareness and research into the symptoms of sepsis and pneumonia in people with LD and improved interagency working (you can read the full and easy-read reports on the Government website).

The Government’s response includes accepting the nine recommendations set out in the LeDeR report, in particular, it commits to improving staff training and says the Government will work on plans to make learning disability training mandatory. You can read Government’s full response here and the easy-read version here, detailing the nine recommendations and associated action plans.

Jan Tregelles, Mencap‘s Chief Executive, said:

These are very welcome first steps for NHS staff in England to get basic training on how to provide high quality care for people with a learning disability.

But if the NHS really wants to stop the scandal of the 1,200 preventable deaths of people with a learning disability every year, all nurses and doctors must get higher level training.

This mandatory training must be in partnership with people with a learning disability and their families, and teach all nurses and doctors how to make reasonable adjustments and understand key laws like the Mental Capacity Act. 

We say to Government – please don’t miss this huge opportunity.

Reactions to the Government’s response:

In the News:

  • “My son has a learning disability. It doesn’t have to mean his early death”. Read the opinion of Lucy Burke, an academic at Manchester Metropolitan University and co-chair of Learning Disability England, representing families and carers, on the government response to the LeDeR here.
  • Autism is often talked of as a label but for me it is a way of being” It means seeing the world in a very intense and colourful way. Yet, at the same time, being autistic can also be extremely challenging; seeing, feeling and experiencing life with such intensity can be completely overwhelming – Read more of this personal account at – The Metro.
  • Watch Believe That. A short documentary, directed by Caleb Yule. The film follows the journey of Team Santos, three players from Brighton Table Tennis Club, as they prepare to represent their country at the European Down’s Syndrome Championships.2018-09-13 (2).png

Take Part:

  • Mencap have created a survey for their Treat me well campaign, which aims to transform the way people with a learning disability are treated in hospital. They want to hear more from people with a learning disability and the people who support them about their experiences in hospital. The more responses, the stronger our results!  Click here to find out more, including easy-read information and the survey for carers.
  • There is still time to complete an important survey about services available to children with LD and ASD that display inappropriate or harmful sexual behaviours.  Please consider taking 10 mins to help the Tizard Centre, University of Kent find out more about this group of young people with complex problems and specific needs. Read more and complete the survey here.


  • ySOTSEC-ID – two-day Keep Safe facilitator trainingKeep Safe is a CBT based intervention programme specifically developed for young people (12 years +) with learning and developmental disabilities who display harmful sexual behaviour(s). The next 2 day Keep Safe Training event will be held in London on 17th and 18th October 2018 – find out more here.



  • LTP Learning Disabilities and Autism: conversations with clinicians, Thu 20 September 2018, London.  This event is to reach out to clinicians who have not yet had, but would like the opportunity to have, a conversation with leaders tasked with developing priority areas within the NHSE Long Term Plan to reduce health inequalities and avoidable premature deaths, for people with a learning disability and autistic people.  Register here.
  • Learning Disability Today Conference, London. The annual event welcomes all with accessible talks consisting of three main topic streams (1) Autism & Learning Disability, (2) Health & Welbeing, (3) Policy & Practice.  The CPD certified conference is being held at the ILEC Conference Centre, Earls Court, on 28th November 2018. Find out more and book your place here.Greater London Community of Practice
  • Sign up to the Greater London Learning Disability Community of Practice free launch event! 7th November 2018 at the Holiday Inn London Bloomsbury. Come along and join the new community providing opportunities for people with learning disabilities, families, carers and professionals. Find out more and Book your place here.

Don’t forget to join our GLLDCOP facebook group and follow us on Twitter @glldcop

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this:
search previous next tag category expand menu location phone mail time cart zoom edit close